Happy Easter! He IS Risen! We had such a fun Easter this year celebrating with family. We went to a wonderful service at my parents church and the message was really powerful! Cousins were up from PA and so we all had Easter dinner together at my other cousins house and she had a fun egg hunt for the kids. We have moved in with the ole rents while Jim and I are looking for a place to buy or rent in the area. It has been great so far, I think the best it could be, given the circumstances; however, we are both feeling the lack of space and privacy:)
One stress that I'm hoping goes away by next week is the fact that we have still not closed on the house. Our buyer has needed to extend the closing date twice now because of amended tax returns from last year that we are waiting to be electronically transmitted to her mortgage company. It is frustrating as everything else is kind of on hold until we sign those papers. I'm praying that it will all happen within the next week.
Health stuff has been frustrating lately but I'm really trying not to focus on that too much, but it's hard not to. I still exercise 6 days per week but it seems to be getting harder, although at my clinic appointment on March 6th my breathing tests showed consistency since the last visit. I just have to keep plugging away at taking the best possible care of myself.
I've been praying for God to show me where he wants to use me. I was working part time and doing a number of volunteer positions before we moved and I just haven't figured out where I fit yet here. I know it will just take time and I really want to find the right thing so I am just being patient doing some researching and praying about it.
Wednesday, April 3, 2013
Saturday, February 23, 2013
It's been a while and we are moving!
So I haven't blogged in a llooooooooooong time! A lot has been going on in the Grumbine house in the last few months:)
We are moving! Closer to Jim's job and my family. We accepted an offer on our house and will close on March 20th. I feel torn about this because we love it here for so many reasons:
1. The area is beautiful. 5 minute drive to the ocean is priceless! I bring the dog to the beach at least a couple times a week to see the seals sun bathing.
2. Our church family is great. I have never felt as at home as I do in our church. The people are amazing. True God followers. The last 2 years has been a time of real growth for both Jim and I.
3. The town we live in and the house we live in are so cool. The downtown has so many neat shops and restaurants. We won't be able to find a house like this again. I have never lived in a home of this quality. We really lucked out finding this.
4. It is convenient to everything! Maine (my cf clinic, kittery outlets, the beach), New Hampshire, Boston.....everything is very easily accessible.
As we've been praying about it though, moving closer to my family and where Jim's current job is, seems like the right decision. I'm thankful for the blessing of staying with my parents until we figure out where we want to buy/rent.
Another big thing that happened last month:
I was asked to come and speak at the FDA advisory board meeting in DC for the drug inhaled mannitol. I gave my testimonial as to how this drug is benefiting me because I have been taking it through the compassionate use program for over a year now. I didn't realize that, although there were over a hundred patients in the phase 3 clinical trial for this drug, I am the only cf patient currently on this drug in the US through compassionate use. It was a pretty amazing trip! Jim and I got to meet some wonderful doctors as well as the head of clinical affairs at the cf foundation. It was so cool to see how the process of approving a drug in this country works. In the end, the advisory board unfortunately voted down the drug because of some safety concerns they had with patients in ages 6-17 but hopefully this is not the end of inhaled mannitol. I believe the drug company will appeal this decision. It is helping me greatly as well as many other cf patients in different countries.
On the social front:
I had my very good friend Ashley come and visit from California recently. It's always a blast when she comes to visit because she is so much fun but it also gets the girls together too:) We had such a fun girls night in NH at my friend Erin's house, eating, laughing and chatting it up all night. We had a sleep over and each of them are so awesome about helping me out with my medicine. They each took a stab at doing my manual chest therapy. (They loved having the opportunity to hit me.)
Last night, a group of us girls from church, took my friend, Danielle, out for her birthday. That was fun times as well. We asked our server to come and sing to her after dinner and they did a fabulous job at embarrassing her!
We were supposedly getting a big storm tonight and continuing into tomorrow but I think the initial reports were way exaggerated. I think we are only getting a couple of inches of snow now. Hopefully the weather isn't so bad that church is canceled. We have a missionary speaking tomorrow and this is also one of the last Sundays to sing with the praise team before we move:(
We are moving! Closer to Jim's job and my family. We accepted an offer on our house and will close on March 20th. I feel torn about this because we love it here for so many reasons:
1. The area is beautiful. 5 minute drive to the ocean is priceless! I bring the dog to the beach at least a couple times a week to see the seals sun bathing.
2. Our church family is great. I have never felt as at home as I do in our church. The people are amazing. True God followers. The last 2 years has been a time of real growth for both Jim and I.
3. The town we live in and the house we live in are so cool. The downtown has so many neat shops and restaurants. We won't be able to find a house like this again. I have never lived in a home of this quality. We really lucked out finding this.
4. It is convenient to everything! Maine (my cf clinic, kittery outlets, the beach), New Hampshire, Boston.....everything is very easily accessible.
As we've been praying about it though, moving closer to my family and where Jim's current job is, seems like the right decision. I'm thankful for the blessing of staying with my parents until we figure out where we want to buy/rent.
Another big thing that happened last month:
I was asked to come and speak at the FDA advisory board meeting in DC for the drug inhaled mannitol. I gave my testimonial as to how this drug is benefiting me because I have been taking it through the compassionate use program for over a year now. I didn't realize that, although there were over a hundred patients in the phase 3 clinical trial for this drug, I am the only cf patient currently on this drug in the US through compassionate use. It was a pretty amazing trip! Jim and I got to meet some wonderful doctors as well as the head of clinical affairs at the cf foundation. It was so cool to see how the process of approving a drug in this country works. In the end, the advisory board unfortunately voted down the drug because of some safety concerns they had with patients in ages 6-17 but hopefully this is not the end of inhaled mannitol. I believe the drug company will appeal this decision. It is helping me greatly as well as many other cf patients in different countries.
On the social front:
I had my very good friend Ashley come and visit from California recently. It's always a blast when she comes to visit because she is so much fun but it also gets the girls together too:) We had such a fun girls night in NH at my friend Erin's house, eating, laughing and chatting it up all night. We had a sleep over and each of them are so awesome about helping me out with my medicine. They each took a stab at doing my manual chest therapy. (They loved having the opportunity to hit me.)
Last night, a group of us girls from church, took my friend, Danielle, out for her birthday. That was fun times as well. We asked our server to come and sing to her after dinner and they did a fabulous job at embarrassing her!
We were supposedly getting a big storm tonight and continuing into tomorrow but I think the initial reports were way exaggerated. I think we are only getting a couple of inches of snow now. Hopefully the weather isn't so bad that church is canceled. We have a missionary speaking tomorrow and this is also one of the last Sundays to sing with the praise team before we move:(
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