So while I was doing my usual researching on different websites about cystic fibrosis and different clinical trials going on, I came across a very interesting one. One that I have seen before and thought that I would never qualify for based on the exclusion criteria (I have burkholderia cepacia). Well to my surprise, cepacia was not listed this time as one of the exclusions and the trial is being conducted about an hour from my home! So I immediately called the contact number given and over the course of the last couple of days, I have been speaking back and forth with the research coordinator. Based on the information given on the government website, I knew that I had one of the gene mutations they were looking for in the trial but I was shocked that out of a very small list, I also have one of the other ones they require for this trial! (there are over 1500)
I just started crying tears of joy! Not because this has to be a definite thing but sometimes all I need is a glimmer of hope. To me this was God saying, see I have not forgotten you:) If I can have hope of a day without hours of treatments and medicines each day, that is all I need to keep me plowing through each day. This potential therapy, in theory treats the underlying cause of cystic fibrosis. In theory, corrects the faulty mutation that causes cystic fibrosis! And its a pill! Thank you Lord for leading me to this trial and for the hope of a new day. Regardless of whether or not I get to be a part of this trial, it is an awesome thing and I do believe that cf research is on its way to a cure:)
No comments:
Post a Comment