Sunday, February 12, 2012
I'm on Bronchitol:)
So it's been a couple of weeks since my last post and a lot has happened. Good things:) I heard from my nurse about 10 days ago that we may be hearing from the FDA about the approval of a drug that I have been waiting for as my case had been expedited by someone from the research institute. It seems like it has been forever but it's only been 8 long months since my clinic applied for the compassionate use of a drug that is not yet FDA approved to treat my cystic fibrosis. I was in a clinical trial a while ago and had the opportunity to be on this medicine for 6 months and it did great things for me and my doctor felt that we should try to get me back on it at this point. Well, my lungs haven't been doing that well since August and I have become very impatient but God's timing is perfect and when I got the actual call that it had been approved, I just began sobbing! It felt too good to be true. I am so thankful to my God and I am thankful for my cf team and the research institute for working so hard to get to this point and for all of the people who have been praying about this. I've now been on the drug for about 3 days and I feel pretty good and I'm praying that it only gets better from here:)
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